It has been a year since Emilee was enrolled in Early Intervention. She was a tiny 6 week-old who could barely hold her head up for any length of time. Her goal for occupational therapy (OT) was to increase strength for head holding and to grasp toys. I remember barely sleeping the night before our first evaluation. Why should I expect, what are they going to tell me about her development, are we going to get enough services?
Fast forward a year later and I still barely slept last night. We have an amazing team and I knew we will get the services we need. But it was the thought of hearing how delayed she is as they break down categories. I know she isn't crawling like most children her age and walking, this girl can barely weight-bare on her legs for longer than a few seconds. I also know that she isn't interacting with toys like most other children. The age on the toys I tend to laugh at, Emilee still doesn't push things or manipulate them in any way other than chewing.
No, it wasn't knowing what I know about her, it was hearing what a developmental test told me about her. As 10:30 rolled around, I felt that anxiousness that I am so used to with appointments and therapy sessions. The three knocks on my door and entered "The Team". We started going over the results and I could hear my heart beating. According to the OT our scores did not qualify us for any services. I was shocked. I know cognitively we had thought she would score too low but the reality was she didn't. Up next was PT and again her scores did not qualify for services. Now before everyone gets all crazy worried, she has a diagnosis of a developmental delay and a diagnosis alone will get you any services you need or want. But her scores alone show that she is functioning at the 11-12 month age range!
So where do we go from here? Well, our services are staying the same. We have OT and PT weekly and are going to add the CHOP aquatic therapy weekly. We also are looking into getting orthotics for her feet. She has significant hypotonia in her feet and legs and as a team we decided that it is something to look at for the future months. While you are sitting there thinking "awwww she has to have braces on her feet." Yes, she does. But while I had my self-pity-party already, it is important to remember that this is going to help her stay at the top of her game and to hit her milestones and developmental timeline. (Yes, I have coached myself numerous times and the first time someone comments on her braces I will likely bust out crying-- here is your fair warning).
In other news...
Connor is loving soccer and the cooler weather, Mommy is going insane juggling everything and Daddy is prepping for a week by himself in the city while the Pope visits (AKA we will be in Maryland for a while!)
That is all the time I have for sharing now, I have reading, writing and lunch prep to do.
Fast forward a year later and I still barely slept last night. We have an amazing team and I knew we will get the services we need. But it was the thought of hearing how delayed she is as they break down categories. I know she isn't crawling like most children her age and walking, this girl can barely weight-bare on her legs for longer than a few seconds. I also know that she isn't interacting with toys like most other children. The age on the toys I tend to laugh at, Emilee still doesn't push things or manipulate them in any way other than chewing.
No, it wasn't knowing what I know about her, it was hearing what a developmental test told me about her. As 10:30 rolled around, I felt that anxiousness that I am so used to with appointments and therapy sessions. The three knocks on my door and entered "The Team". We started going over the results and I could hear my heart beating. According to the OT our scores did not qualify us for any services. I was shocked. I know cognitively we had thought she would score too low but the reality was she didn't. Up next was PT and again her scores did not qualify for services. Now before everyone gets all crazy worried, she has a diagnosis of a developmental delay and a diagnosis alone will get you any services you need or want. But her scores alone show that she is functioning at the 11-12 month age range!
So where do we go from here? Well, our services are staying the same. We have OT and PT weekly and are going to add the CHOP aquatic therapy weekly. We also are looking into getting orthotics for her feet. She has significant hypotonia in her feet and legs and as a team we decided that it is something to look at for the future months. While you are sitting there thinking "awwww she has to have braces on her feet." Yes, she does. But while I had my self-pity-party already, it is important to remember that this is going to help her stay at the top of her game and to hit her milestones and developmental timeline. (Yes, I have coached myself numerous times and the first time someone comments on her braces I will likely bust out crying-- here is your fair warning).
In other news...
Connor is loving soccer and the cooler weather, Mommy is going insane juggling everything and Daddy is prepping for a week by himself in the city while the Pope visits (AKA we will be in Maryland for a while!)
That is all the time I have for sharing now, I have reading, writing and lunch prep to do.
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| A year ago... when tummy time was a challenge! |
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