Some days I have this impending feeling of doom. I can't get done everything on my to-do list, give attention to the kids and still have time for me. I would need something like 80 hours in a day, or so it seems. I have tried making lists and schedules and as the time passes, tasks become unchecked, I lose hope that I can be the mother, wife and student that I should be. SHOULD. Who determines what I should be? me.
Having two kids is exhausting. Hell, having one kid is exhausting. Throw in the tasks of everyday and the special therapy and doctor's appointments due to special needs and it turns into a Hurricane. Emotions lead to floods and soon you just drown in the tasks. But after every Hurricane is a beautiful day. The sun comes out and shines and you forget all about how terrible that storm was. You rebuild and clean up. There is hope. There is always hope.
And after this sappy introduction I present my hopeful situation after the Hurricane.
Emilee's cardiologist appointment in July left Kyle and I very uncomfortable and uncertain in what road or path we wanted to go with... well, everything. Facing the possibility of an open heart surgery we felt shattered and scared. My goal as a mother with a daughter with special needs was to stay proactive, to stay on top of medical appointments, therapy appointments and creating the best environment for growth. I don't want to impede her development by not giving her opportunity to grow. So, we decided to get a second opinion.
CHOP- Children's Hospital of Philadelphia is like walking into a five star hotel. The people are amazing. They work there because they love kids and want to be there. I mean what office makes Saturday appointments and everyone is so happy to see you?! We met Dr. Glatz after having another EKG and Echo performed. He restored a sense of hope when we went in expecting to hear the same news we had heard just months prior.
We may be able to do a catheterization procedure after all. Time will tell, but we are in no rush to have a procedure done because she is growing and she is thriving in her environment. So what does that mean, where do we go??
This all means that we have a follow-up appointment in six months at which time we will have repeated tests to check for any changes in her health or condition of her heart. We will go back in another six months to check again and begin talking about the procedure. By the age of three, Emilee will have a procedure done to close up the defect. This means that she will lead a healthy and active life and that alone gives me hope.
Dr. Glatz was amazing in comparison to the doctor, who I will not name from Nemours. We could fully understand everything he said, no funky pictures to decipher, no language to look up when we got home. We left without a single question in mind. We left with such a euphoric high that the rest of the day seems to blur. We have found our hope and have zero plans of ever abandoning that.
Now, with all of that hope does come a level of uncertainty. There is always a chance that the catheterization process will not work and we would need to opt for the open heart surgery. I understand this fully. But what Dr. NEMOURS didn't do was give us the hope that an option would exist, he was where the storm began and now Dr. Glatz has given us the sunny day to enjoy and rebuilt and plan for the future.
I have hope because there is always hope. Now, if I could just transfer a little sunny day to the other areas of my life including the sink full of dishes.............
Until later....
Having two kids is exhausting. Hell, having one kid is exhausting. Throw in the tasks of everyday and the special therapy and doctor's appointments due to special needs and it turns into a Hurricane. Emotions lead to floods and soon you just drown in the tasks. But after every Hurricane is a beautiful day. The sun comes out and shines and you forget all about how terrible that storm was. You rebuild and clean up. There is hope. There is always hope.
And after this sappy introduction I present my hopeful situation after the Hurricane.
Emilee's cardiologist appointment in July left Kyle and I very uncomfortable and uncertain in what road or path we wanted to go with... well, everything. Facing the possibility of an open heart surgery we felt shattered and scared. My goal as a mother with a daughter with special needs was to stay proactive, to stay on top of medical appointments, therapy appointments and creating the best environment for growth. I don't want to impede her development by not giving her opportunity to grow. So, we decided to get a second opinion.
CHOP- Children's Hospital of Philadelphia is like walking into a five star hotel. The people are amazing. They work there because they love kids and want to be there. I mean what office makes Saturday appointments and everyone is so happy to see you?! We met Dr. Glatz after having another EKG and Echo performed. He restored a sense of hope when we went in expecting to hear the same news we had heard just months prior.
We may be able to do a catheterization procedure after all. Time will tell, but we are in no rush to have a procedure done because she is growing and she is thriving in her environment. So what does that mean, where do we go??
This all means that we have a follow-up appointment in six months at which time we will have repeated tests to check for any changes in her health or condition of her heart. We will go back in another six months to check again and begin talking about the procedure. By the age of three, Emilee will have a procedure done to close up the defect. This means that she will lead a healthy and active life and that alone gives me hope.
Dr. Glatz was amazing in comparison to the doctor, who I will not name from Nemours. We could fully understand everything he said, no funky pictures to decipher, no language to look up when we got home. We left without a single question in mind. We left with such a euphoric high that the rest of the day seems to blur. We have found our hope and have zero plans of ever abandoning that.
Now, with all of that hope does come a level of uncertainty. There is always a chance that the catheterization process will not work and we would need to opt for the open heart surgery. I understand this fully. But what Dr. NEMOURS didn't do was give us the hope that an option would exist, he was where the storm began and now Dr. Glatz has given us the sunny day to enjoy and rebuilt and plan for the future.
I have hope because there is always hope. Now, if I could just transfer a little sunny day to the other areas of my life including the sink full of dishes.............
Until later....
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